tag:blogger.com,1999:blog-19102494.post3978000762112288685..comments2023-10-07T07:52:24.587-07:00Comments on CLL Diary: Onward and upward with RevlimidDavid Arensonhttp://www.blogger.com/profile/13876562687586184006noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-19102494.post-44780320348914538952010-12-21T12:50:57.517-07:002010-12-21T12:50:57.517-07:00BBG,
For updates on JLOU and Tom, go to CLL Forum...BBG,<br /><br />For updates on JLOU and Tom, go to CLL Forum (www.cllforum.com).<br /><br />DavidDavid Arensonhttps://www.blogger.com/profile/13876562687586184006noreply@blogger.comtag:blogger.com,1999:blog-19102494.post-26049341385920192472010-12-21T06:27:09.086-07:002010-12-21T06:27:09.086-07:00hi, I wish everyone a good day. I was wondering ho...hi, I wish everyone a good day. I was wondering how JLOU was doing, my brother has been on the PCI-32765 trial since end of october. <br />Thank you, BBGAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19102494.post-80840859303493130822010-09-30T13:03:03.511-07:002010-09-30T13:03:03.511-07:00david-
Good for you! I do want you to check into ...david-<br />Good for you! I do want you to check into the new trial that Tom is on at MDAnderson. It is absolutely fantastic at reducing large nodes, but they may be it's best reward.....they don't know yet. It is Btk inhibitor PCI-32765.Tom has only been on it a few days, but no side effects like the Revlimid had. No drowsy, brain mashing feelings. His glands have tingled a little but are already melting away. We are watching the 8cm one in particular. <br />This drug literally pushes all the CLL out of the lymph nodes and into the bloodstream. They expect Tom's WBC to triple during the first week. Sad to say, it is only a phase I trial, so there is nothing that is being used to synergize with it yet. that should happen after this trial of 6 months. It is also oral. <br /><br />Take care and keep updating---<br />love,<br />JLOUAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19102494.post-89182366062544048992010-09-28T22:39:12.850-07:002010-09-28T22:39:12.850-07:00David,
Your plan makes good sense. The trick with...David,<br /><br />Your plan makes good sense. The trick with lenalidomide seems to be to go slow and to go long.<br /><br />I am considering it myself as a prelude to a second transplant, It seems to work well on the nodes 11q -ers like you and me have. Also it doesn't seem to screw up the auto-immune issues, in my case ITP<br /><br />Thanks for sharing your story <br /><br />We are all in this together<br /><br />Brian http://bkoffman.blogspot.com/Brian Koffmanhttps://www.blogger.com/profile/13250684684103918493noreply@blogger.com