CLL Diary

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE

Friday, April 04, 2014

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My beloved soulmate, David, died on March 6. I'll post details when I'm emotionally able. Marilyn                           ...
63 comments:
Thursday, February 13, 2014

The road ahead

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I've met with my transplant/CLL doctor, Jose Leis, at the Mayo Clinic in Phoenix. He was pleased with my response to Ibrutinib -- dramat...
14 comments:
Sunday, February 09, 2014

Getting Ibrutinib

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Update: Ibrutinib has just been approved by the FDA for CLL, which should make it widely available to CLL and Richter's patients. I h...
6 comments:
Thursday, January 30, 2014

Riding the Richter's roller coaster

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As the title of this post implies, things have changed since October , when it appeared I had achieved a pretty good response to treatment....
8 comments:
Thursday, October 10, 2013

Good news, everyone!

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In the immortal words of Futurama's Professor Hubert Farnsworth, who I am growing to look like more every day, "Good news, everyone...
15 comments:
Sunday, August 25, 2013

The cancer survivors park

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Marilyn and I ran across a sculpture garden devoted to cancer survivors in a park near downtown Santa Rosa, California. It's properly kn...
8 comments:
Wednesday, July 17, 2013

I'm finally not feeling like crap

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Greetings from the cancer ward of Banner Baywood Medical Center in Mesa, AZ, where I am undergoing round four of chemotherapy to combat agg...
14 comments:
Sunday, June 02, 2013

April nightmare; May resolve

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When last I wrote , things were looking pretty good. I had gotten a better-than-expected result from bendamustine and rituximab. I was plann...
17 comments:
Sunday, March 17, 2013

Bendamustine and rituximab: the verdict

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The results are in. After five cycles of bendamustine (Treanda) and rituximab, which ended in mid-November, I can report that the treatment ...
22 comments:
Thursday, January 03, 2013

Red cell rebound

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I knew I was feeling more energetic recently when, after going up and down the stairs moving a dozen cardboard boxes, I didn't feel espe...
3 comments:
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David Arenson
Writing has been in my blood longer than CLL. I am a former newspaper reporter and editor and co-author with Marilyn of two humor-trivia books, Disco Nixon and Rambo Reagan. Marilyn and I met at the University of California at Santa Cruz and now live in the red rock country of Northern Arizona . . . CLL Diary has been featured in CR, the magazine of the American Association for Cancer Research, and in Family Practice Management, a publication of the American Academy of Family Physicians. Besides writing about CLL, I helped establish CLL Forum, one of the largest discussion groups for patients and caregivers.
View my complete profile
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