As leukemia patients, we face the emotional as well as the medical challenges of our disease. If CLL does anything, it reminds us that we are mortal. For some, this can bring positive changes, and for others it can lead to depression. Sometimes it does both.
There is an ongoing discussion of this at CLL Forum, which is one of my favorite places because people can speak openly and honestly there. This discussion got me to thinking, and a post that I wrote for the Forum says something that I think merits being said here, in a slightly expanded version:
Life is terminal, even for the healthiest of people. Personally, I do not know if I will die of CLL. I may get hit by a truck. I may come down with something else. I may die with CLL. For all I know, there may be a cure in ten years, or I may have to do a stem cell transplant in ten years and it might cure me. None of us knows what tomorrow will bring.
Which brings me to the larger point: Focus on today. Find things to enjoy and appreciate, even the little things that once might have seemed inconsequential. Savor life, not because you have CLL, not because your life will end one day -- and who knows what our journey is after that -- savor it because you are blessed to be here.
The Navajos live not far from where I do. They have a ceremony called the Beautyway (also called the Nightway), which a sick person goes through in order to re-establish balance and beauty in his or her life. This sums up what I think is the best attitude to have toward life, even in illness.
First, here is a little background from a Navajo website:
"The Diné [or "the people," as the Navajos call themselves] journeyed through three lower worlds in various forms of being, faced by many trials and tribulations before they emerged into this world that we call Disoos, the Glittering or Sparkling World. We inhabit the land between the four sacred mountains bounded by the great rivers. The Holy People created this world for us from which we are never to stray and which we must always protect. The Holy People also live in this world, in sacred places, on the mountaintops, in the canyons, and the valleys. They have power over our daily lives by requiring us to walk and stay on the path of Hozhóó (harmony). Each day our morning prayers are said toward the east before the sun rises. We express gratitude for our good life, for our livestock, for our land, and the wonders we live among."
May it be beautiful before me.
May it be beautiful behind me.
May it be beautiful above me.
May it be beautiful below me.
May I walk in beauty.
Here is a discussion of the Beautyway ceremony from another site:
"The reasons why one may lose their sense of beauty, of balance and of harmony are many. But the cure, for the Navajos, is one and the same. One must find the way to Beauty, and if one wanders away from this way, from the Beautyway, then one must re-establish one's link to the natural world in order to regain it.
"To Walk in Beauty means not only walking physically. It also, and primarily, means being in harmony with all things and all people, with all objects, all the animals, all the feelings, the plants, the weather and all the events in your life. It means being at peace, serene in the knowledge that all around you is well and that you are well with everything in your life. You accept and are accepted, there is nothing that pulls you in one direction or the other, the polarities are neutralized, you are one with everything. You are ready to walk in Beauty."
The Navajo beautyway ceremony
(anonymous Navajo author)
In beauty may I walk
All day long may I walk
Through the returning seasons may I walk
Beautifully I will possess again
Beautifully joyful birds
On the trail marked with pollen may I walk
With grasshoppers about my feet may I walk
With dew about my feet may I walk
With beauty may I walk
With beauty before me may I walk
With beauty behind me may I walk
With beauty above me may I walk
With beauty all around me may I walk
In old age, wandering on a trail of beauty, lively, may I walk
In old age, wandering on a trail of beauty, living again, may I walk
It is finished in beauty
It is finished in beauty
BLOGGER'S NOTE: Later this week Marilyn and I will drive in beauty to Ohio, where I will consult Dr. John Byrd for a second opinion on my CLL. Given the disruptions of travel, posts to the blog may be a bit irregular during the next few weeks.
I've go to admit it's getting better: More good news about my CLL (chronic lymphocytic leukemia) - Most of my blog posts can be followed here. The full story of my CAR-T therapy, the incredible rollercoaster and the amazing results can be found there I...
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